Who do we represent?
- people in Victoria living with a diagnosed and undiagnosed bleeding disorder
- people in Victoria who are partners, family or carers of people with a bleeding disorder
- extended family and friends
In Australia there are more than 7,000 people diagnosed with haemophilia, von Willebrand disease (VWD) or other related inherited bleeding disorders.
- Haemophilia/Carry the gene = 3,130
- VWD = 2,460
- Rare clotting factor deficiencies/other bleeding disorders = 1,450
Our Governance
HFV is an incorporated registered charity in Victoria and reports to the Australian Charities and Not for Profits Commission.
Haemophilia Foundation Australia (HFA) is the national peak body and HFV President is a member of the Council, its main governing body.
Our Strategic Plan 2021-2025
Our Vision
Connect, support and empower our community affected by bleeding disorders
Our Values
Respect, Inclusion, Leadership, Responsiveness, Integrity
Our Goals
- Health Promotion
- Community Wellbeing
- Connectedness and Engagement
- Strong Collaborative Partnerships
- Governance & Sustainability
Our Patron
Dr Alison Street AO
Our Committee of Management
Dan Korn, President
Donna Field, Vice president
Bernard Paes, Treasurer
Leonie Demos, Executive member
Zev Fishman
Ben Inglis
Chris Phong
Our Staff
HFV has two staff:
Andrea McColl Executive Assistant
Zehra Basak Communications Officer
Our Activities
HFV’s activities focus on Health Promotion and Peer Support.
HFV Health Promotion strives to:
- Assist people with bleeding disorders to understand and manage their physical and mental health
- Promote integrated patient centred healthcare for people with bleeding disorders
- Improve public understanding of bleeding disorders and the various cohorts that comprise the bleeding disorders community
- Reduce stigma and discrimination by improving understanding within affected and the wider community
- Promote and support other key state government department health alerts and messaging
HFV Peer Support activities:
- Provide support, advocacy and leadership for people living with a bleeding disorder including those in vulnerable settings
- Provide safe settings that enable peer interaction, foster peer support and facilitate connections
- Ensure the voice of lived experience drives our work
- Reduce the impact of stigma by building resilience and offering support