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Items tagged 'pauline'

  • News & Stories

World Hepatitis Day 2024

Sunday, 28 July 2024 is World Hepatitis Day. This is a day when we come together worldwide to share the message, 'It’s time for action'.
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  • News & Stories

New video: Haemophilia inheritance in males

If you were born male with haemophilia, will your children have haemophilia too?
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  • News & Stories

Men’s Health Week 2024

International Men’s Health Week runs each year in the middle of June. It is an important opportunity to highlight the importance of men’s health, and to promote and support the health and wellbeing of men and boys in our communities.
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  • News & Stories

Paul talks about his career

Paul shares his experience working as an apprentice shipwright and boat builder, a FIFO WHS manager, and today supporting his brother in a business with over 60 employees and a growing client base.
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  • News & Stories

HFA Gene Therapy Snapshot Survey

HFA would like to understand what our community members want from their haemophilia treatments and your perspectives on gene therapy in particular.
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  • News & Stories

Gene therapy interview with Dr Michiel Coppens now available

On 14 May 2024 we were fortunate to have Dr Michiel Coppens join us at the HFA office for an interview about gene therapy. Watch it now.
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  • News & Stories

Have your gene therapy questions answered

Dr Michiel Coppens is coming to Australia and we want your questions for a special 'Ask Me Anything' interview about gene therapy.
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  • News & Stories

Acquired haemophilia – Jenny’s story

Jenny shares her story of how she discovered she had acquired haemophilia and how it was able to be successfully treated with the support of her hospital and Haemophilia Treatment Centre.
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  • News & Stories

Hopes for the Future

Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia, VWD and rare bleeding disorders. This is a transcript of her presentation.
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  • News & Stories

Growing up with Glanzmann thrombasthenia 

Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.
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© 2024
Haemophilia Foundation VIC

Created with Heartburst

Haemophilia Foundation Victoria acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.​

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